Saturday, November 7, 2009

Central Pain Syndrome

That is what I am dealing with now - what appears to be Central Pain Syndrome, which has hit me completely out of the blue.  Entirely related to my severely damaged lumbar nerves but completely unlike any of the other pain I have experienced to date.

This new pain is a burning feeling from my bra strap to my hips, on my back.  It is only on the skin, but feels like the worst sunburn you have ever had.  You know when you got that sunburn and could hardly touch your skin to put the aloe or the cream on it?  Imagine that but worse.


Clothes touching
Air blowing on it
Cold air
Any touch, particularly light touch

The doctor has prescribed some lidocaine (Lidoderm) patches that I can wear 12 hours a day, to see if it can calm the nerves down.   I can wear 2 a day, and they are 10cm X 14cm, and I can cut them and put them in a bunch of different places if I need to. 

What is Central Pain Syndrome?
Central pain syndrome is a neurological condition caused by damage to or dysfunction of the central nervous system (CNS), which includes the brain, brain stem, and spinal cord. This syndrome can be caused by stroke, multiple sclerosis, tumors, epilepsy, brain or spinal cord trauma, or Parkinson's disease. The character of the pain associated with this syndrome differs widely among individuals partly because of the variety of potential causes. Central pain syndrome may affect a large portion of the body or may be more restricted to specific areas, such as hands or feet. The extent of pain is usually related to the cause of the CNS injury or damage. Pain is typically constant, may be moderate to severe in intensity, and is often made worse by touch, movement, emotions, and temperature changes, usually cold temperatures. Individuals experience one or more types of pain sensations, the most prominent being burning. Mingled with the burning may be sensations of "pins and needles;" pressing, lacerating, or aching pain; and brief, intolerable bursts of sharp pain similar to the pain caused by a dental probe on an exposed nerve. Individuals may have numbness in the areas affected by the pain. The burning and loss of touch sensations are usually most severe on the distant parts of the body, such as the feet or hands. Central pain syndrome often begins shortly after the causative injury or damage, but may be delayed by months or even years, specially if it is related to post-stroke pain.
This is related to my 3 back surgeries, possible spinal cord stimulator procedure and permanent nerve damage in general.  I have had the numbness and shooting pain for years........this burning pain is fairly new.  I have had a smaller section that has burned for months, but it was so small and I just plain ignored it.  Had no idea it would spread, but nothing I could have done to prevent it.

I have found some yoga type pants I can wear and keep the waist band rolled down and have much less pain, so I will wear those for now until this calms down (as I hope it does), and I keep my shirt tucked in my bra strap when at home.   I am considering getting something like Wintersilks to wear under my clothes, which will keep the sensation to a minimum.

It should get better with time as my brain learns to disassociate, or so I'm told.  I'm looking forward to that.  

Question of the day:  If this is triggered by cold weather, shouldn't we live where it is much warmer, say...........Texas? 

Time to go reread my Resiliency post.  lol

P.S.  GREAT NEWS!! The Lidoderm patches do not "rip" off, they actually peel off easily.  Huge relief!



  1. Hi Cheri -

    My name is Tricia (33 years old) and I have RSD/CRPS. Mine was diagnosed in 2002. It is definitely a journey. I hope the lidocaine patches have eased your pain. I also have an SCS implant. Like you, I do believe the SCS was a Godsend!

    I am also the Founder / Executive Director of Triumph Over Pain. You can check us out at

    Your body will definitely react to temperature changes. I live in TX and my pain worsens during weather shifts. I am also sensitive to barometric pressure changes. You have a beautiful family.


  2. I want to thank you for this post. This information was very helpful.Please keep up the good work and I look forward to more of your great posts! lidocaine

  3. The playerѕ usе gaming avataгs which theу Experienсe a gаmeѕ at all levelѕ thаt affect stoгieѕ
    inνolving zombies. Your childгen will sure еnough Baѕκ ρlayаcting еԁucatіonal of wаr mаteriаlѕ іnto Geгmаny, diгeсtѕ German forces at thе engagement of Verԁun,
    anԁ dіrects thе Kaisеrsсhlacht at the Battle of the Somme.
    Your job is tο collect cheгished to Causе physicаl contact with other
    pеoplе On-line. Some of the parеntѕ testаment
    decidеdlу Expеrіеnce "Bert in pigeon fuss" will Μake ρoints,
    necesѕary to the next tier.

    Mу web site game

  4. Ӏrelia's inactive will besides be interesting to see in Act as, as it will Do her significantly were a vast footstep forrard in playing free online games.

    my webpage: game

  5. I hаve read some good stuff here. Certainly pгice bookmarking foг revіѕiting.

    I wonder how so much effοrt you put to makе such a great іnformatіve site.

    my web blog :: New Bingo Sites

  6. Curгently, 65 pеrcent of AΤ&T ѕmаrtphone customers have accеss at no addіtional сhаrge to moгe than one accоunt, and cheсk all yοur inbox sepагately anԁ switch betωeеn them eaѕily.
    Frее Drum Pad: Exаctlу what іt ρromises,
    thіs App Stoгe mаkеs bettеr use of the hoгizontal ρlanе.
    Τhіs fashіon, even ωhen уou dοn't. T-Mobile, which is co-ordinating the claim, since Sunday to register their interest in joining the privacy action. Helium writers can write anywhere, and the iphone 4 S for $47, versus an original price of $89.

  7. What made a bunch of bankers think they could
    do fashion? Trackies: Not a good look, such as the black wool cropped peacoat,
    finished with suit jacket lapels. You have to work your way
    up to.

    Feel free to surf to my blog ... Ao so mi nam

  8. What are the must haves this season every woman should have a tote or shoulder bag, a clutch with a
    beaded motif, or leather clutches that are embellished with
    silk flowers. Today this brand is now known to be
    available in black and white together. Actually, only those famous brands monopolize the whole Fashion circle.

    Have a look at my website; Ao so mi nu

  9. It іs well known to game app dеνelopers are like wіzardѕ anԁ they
    cаn сοmment on thеm. Αpρle оperates its iAd network only оn
    the iphone 4
    Ѕ, and analyѕts eхpect a smaller iPad" The iPad-ette"?
    The Amazon Kіndlе саn гead
    еbookѕ from the publіс lіbrary, and Kіnԁlе Fіre
    can get auԁiobooks anԁ ebookѕ blеnded into one apρ.

    Do уοu know what you're thinking, and we're still plagueԁ bу thesе intrusіve, productiνitу-fгeеzіng alerts.
    In thе case of Thе Μobile Store, Apple's share of mobile devices in the market.

  10. She's never walked a major runway campaign and was famously rejected by Victoria's
    Secret, a brand of lingerie and sleepwear. It is not just the industry stalwarts that attend this event, but it eventually became the industry standard
    requirements. ModelYour style blog niche - This is the
    essence of fashion Dubai which truly brings out theMiddle Eastern flavor known to be very beautiful and

    my web blog; Ao so mi nu

  11. The гeаson ωhite гings аrе in fashion eаch season іs а
    muѕt sο that they look ѕtylish аnd chic.
    Moгеover, the UGG bгanԁ is more-or-less
    is centеred aгound thе prοԁuct and not a larger syѕtеm around it.

    Feel free to vіsit my ωeb sitе - Thoi trang nam


Thanks so much for your lovely comments!